HRB Open Research Blog

embedded patient-researchers can transform research and healthcare

Improving the quality of health research with patient-researchers

By Guest Author

10 November 2021

Embedded patient researchers can amplify the patient voice to transform research and healthcare. In this blog, patient researcher Robert Joyce talks about his involvement with a trial at National University of Ireland, Galway. Thanks to Public and Patient Involvement (PPI) the trail design was changed to better fit the needs of people living with multiple sclerosis.

Myalgic encephalomyelitis

It’s time to start listening to people with myalgic encephalomyelitis

By Guest Author

17 August 2021

For far too long, people with myalgic encephalomyelitis (ME) have been routinely dismissed, ignored, or misdiagnosed by the medical profession. A new Patient and Public Involvement (PPI) driven research study, published on HRB Open Research, led by John Cullinan, Orla Ní Chomhraí, and Tom Kindlon sheds light on how this can impact those living with ME and their carers. It also has important implications for how we treat long COVID-19 patients.

Animal assisted intervention

‘Pawsitive’ influence – Do animals boost morale and help children recover in hospital?

By Guest Author

27 July 2021

A team of researchers from University College Dublin (UCD) are exploring how the human animal bond impacts children’s wellbeing in a children’s hospital. The Principal Investigator of this PhD study is Rachel Howe.
In this blog post, Rachel tell us more about AAI, the potential benefits of therapy animals for children and parents, and discusses the UCD group’s research project to determine where and why animal interventions take place. 

Time to SHINE – Research spotlight on Kate Frazer

By Guest Author

14 July 2021

In this post, Kate Frazer from University College Dublin, Ireland, shares how the HRB and their fellowships have helped transform her research career and tells us about her understanding of smoking behaviour and efforts to help stop smoking. Read the blog post to learn more about the project and why public and patient involvement is playing a pivotal role.

The future of genomics in Ireland

By Guest Author

22 June 2021

In this Q&A, Cathal Seoighe, the scientific director of the SFI Centre for Research Training in Genomics Data Science, explains why genomics and clinical genetics have fallen behind other countries and shares his recommendations for a national genomics health strategy, and how this could benefit patients and the public.

Creating a Covid-19 toolbox

By Guest Author

30 April 2021

Catherine Darker, Associate Professor of Health Services Research at Trinity College Dublin, Ireland, is leading a research project to explore the implications of COVID-19 on the public health jurisdictions of the Republic of Ireland and Northern Ireland. In this interview, Catherine tell us more about the project and their plans, as set out in their Study Protocol, published on HRB Open Research on creating a toolbox for public health messaging to guide decision makers in their approach to further waves of COVID-19 or for future epidemics.